Our PJS family started here
Our Mission Statement
The mission of “Rare is Beautiful” is to raise awareness and find a cure for Peutz-Jeghers Syndrome. In addition, we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events.
Rare is Beautiful night at Yankees Stadium
September 17, 2019
dinner / tricky tray event at The Venetian
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April 8, 2019