thank you for your everlasting support of Rare is Beautiful
Our PJS family started here
Our Mission Statement
The mission of “Rare is Beautiful” is to raise awareness and find a cure for Peutz-Jeghers Syndrome. In addition, we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events.
our dinner / tricky tray event at The Venetian
April 12, 2021
our virtual event at Sage
September 15, 2020