Rare is Beautiful country night at Black Jack Mulligan's is coming November 8, 2019

Our PJS family started here

Our Mission Statement


The mission of “Rare is Beautiful” is to raise awareness and find a cure for Peutz-Jeghers Syndrome. In addition, we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events. 

dinner / tricky tray event at The Venetian


April 8, 2019

Blue & Gold Ice Hockey Team (NJSP)


December 29, 2018


Rare is Beautiful is a registered 501(c)(3) organization from the Internal Revenue Service and donations are tax deductible. 


Rare is Beautiful, P.O. Box 551 Elmwood Park, NJ 07407