Our annual event at The Venetian has been postponed til Tuesday, September 15. 2020.

Our PJS family started here


Our Mission Statement

The mission of “Rare is Beautiful” is to raise awareness and find a cure for Peutz-Jeghers Syndrome. In addition, we will also help families whose children are already stricken with cancer and others who are in need. Our mission will be accomplished through fund raising efforts resulting from various events. 


Country for a Cause with Nikki Briar at Blackjack Mulligan's

November 8, 2019


dinner / tricky tray event at The Venetian

April 8, 2019


Rare is Beautiful is a registered 501(c)(3) organization from the Internal Revenue Service and donations are tax deductible. 


Rare is Beautiful, P.O. Box 551 Elmwood Park, NJ 07407